Ok...I'm a little late posting this - but I took this picture when he really was 2 weeks old. He's almost 3 weeks old now...wow! He's had quite an exciting life for less than 3 weeks into it!
I'm thrilled to report that things have been getting better for little Isaiah. We actually had our last (at least for now) visit from our "home nurse" today. He's finally back up to his birth weight - 8lbs 12 oz.! I think he's going to start growing like a weed now!
Shane and I have both taken blood samples and we both feel pretty confident that we can handle this. We've gotten some results back from Iowa City and things are looking good! For a little background, Isaiah PKU levels started out at 6 for his first test when we were in the hospital. A normal person's level is less than 1. The second test came back at a 12...this is when Iowa City contacted us to let us know we needed to come see them. When then tested him in Iowa City it actually went down to 8.8 on it's own before he got on his formula...this was great news that it didn't continue to increase. Then after being on the formula for 14 hours or so it went down to a 3. And a couple days after that it was at 1.9. So things are looking good. We still have 2 blood tests we are waiting for the results back, but hopefully this means he will have a less severe case of PKU than we originally thought. In the next few weeks we should get the DNA test back from Iowa City and if I understand it correctly that will give us more of an idea of the severity of his PKU.
As far as Isaiah's thyroid - we received good news on that too. His medicine has been lowered to 37.5 micrograms rather than the 50 he was on previously. We have to go into the hospital for blood draws for the next 3 weeks to see how his levels are on this. Dr. Norris in Iowa City believes that the 37.5 will be what he stays at, but we have to do all the tests to make sure.
We also may be visiting our family doctor a couple more times before Isaiah's regular checkup due to his weight. They've been a little concerned with him gaining so slowly, but all the doctors think that it is just because he's been switching formula and amounts, etc. Since he's finally back at his birth weight hopefully he'll keep on gaining!
That's about all the updates I have right now. Thank you to everyone for the continued prayers. We're starting to get the hang of being parents and adjusting to the lack of sleep. :)
2 comments:
First of all, congrats on becoming parents. Sorry to hear about all of the issues that you guys have been having. I am glad to hear that it does seem to be getting a little better. I will be thinking about you guys.
Jackie and Shane,
I have been reading your blog after hearing from Jay and Gina, and am so glad for your good news most recently! You needed that! our thoughts and prayers are with you all, and we will continue to keep updated through your blog. Congratulations on this wonderful little bundle of joy, and we pray that all will go well! Sincerely, Nancy
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