Saturday, May 29, 2010

Our little Zay...we love you!

Hmmmm...

Where do I start. Honestly, I haven't even blogged about most of the "health issues" Isaiah has been fighting for the past few months, mainly because I secretly was hoping things would just clear up, go away, and we'd keep on keeping on.

So...a little history.

Isaiah had a cough and some congestive breathing. He started having this back in February. We basically blew it off as a cold, knowing that babies generally catch a lot of colds in the first year of life. When it didn't go away for a few weeks we decided that he probably should be seen by a doctor...just in case. Took him to the doctor, he was seen by a different Dr. because our Dr. was out of the office. Was told, it was indeed just a cold. Give it some time and he will get over it.

We went on with life, dealing with the rattle in his chest and the coughing fits.

When we took Isaiah in for his 4 month appointment, our Dr. mention his breathing was still pretty wheezy. He asked if his cough was better since the last time he was seen by the other doctor, which it wasn't. And so our Dr. was a little concerned with how long this was hanging on. And of course I felt terrible for not knowing that I should be more concerned about this.

What could this be? Dr. thought it's one of three things...Acid Reflux (Isaiah generally spits up quite a bit, and sometimes throws up, but again I've been told by many people the formula can cause this), Asthma, or Allergies.

We start him on breathing treatments 3 times a day and steroids to try to get this cough and congestive breathing under control. As well as antibiotics, for a small red spot on his bottom.

About a week later we have a follow up visit with the Dr. so he can see how Isaiah is improving. Dr. is still concerned with his wheezing, and actually listened to him while he ate to see if acid reflux could be ruled out. Has some concerns that it could be something to do with how he is digesting or spitting up his formula. He takes a chest xray and orders an "upper GI". This comes back normal. It's not acid reflux.

One down...two more to go.

At this point, Dr. decides to do another round of steroids and start us on a new breathing treatment (inhaled steroids, which he can be on for a longer period without the risk of oral steroids). He also talks to the allergist, which will not see Isaiah until he is at least 6 months old.

So, we now do these stronger breathing treatments once a day, they have to be done before he eats, because if the "stuff" he inhales sits in the back of his throat it can cause thrush.

Since starting these new breathing treatments, I would say his coughing is better, but not gone. He has more trouble in the morning and evening with his coughing, so we basically have no explanation for his weird rattling breathing and random coughing. Possibly asthma. Possibly allergies (hopefully not to dogs)!

So....that brings us to this weekend.

We decided to make a long weekend at Lake Delhi for Memorial Day weekend. When I picked up Isaiah from daycare on Friday, we were on our way out of town. Lori mentioned to me that it looked as though Isaiah might have another one of those red bumps on his bottom. Shane had pointed it out the night before, so we ran home and grabbed the leftover antibiotics from the last time and the Motrin.

When we got to Delhi, we decided to take a look at his little bump. It looked a bit like a huge pimple with a head on it. Shane squeezed it and tons of puss came out of it. (s0rry for the graphic description) Anyway, we decided we would call our doctor's office and see if we could use the leftover antibiotic we had from the last time he had one of these bumps.

Doctor on call told us that he would just call in a new prescription for us. Picked up the prescription, got him started on it. About 10:00 last night Isaiah started running a fever. We gave him some Motrin, and mommy and him cuddled all night. We managed to get a little sleep, however as the hours went on the red spot on his bottom got bigger, harder, and Isaiah was in so much pain if we touched anywhere near his right hip area.

We called a friend of my parents who works up at the Manchester clinic and bless her...she met us at the clinic to take a look at him. At this point he was feverish again and so unhappy.

She takes one look at it and immediately grabs another doctor, they both agree it needs to be opened up and drained. Ugh. My poor baby! We help hold our little guy down while they literally take a scalpel and make two slices in his bottom... They did give him a shot to numb the area, but I can tell you there was no doubt he was feeling so much pain. I don't think I've ever heard my little boy cry like that. I cannot explain how much it hurt me to watch as they had to slice him open and then take a scissors-like tool to open the wound and squeeze out all the gross stuff inside there. (again, sorry for the graphic!) They packed it, so the wound would stay open and continue to drain over the next few days.

They took a culture of it and we have to wait until Tuesday or Wednesday to get the results back. Their prediction of what this is. MRSA...once again MY POOR LITTLE BABY. I didn't even know what she was talking about or what how serious MRSA can be. I pray that this isn't what it is, but the doctor sounded pretty sure that it represented MRSA.

Oh man, my heart just breaks for my little boy. I seriously pray that his life only gets easier after this first year of life. He's such a trooper. His pain tolerance amazes me and also just makes me sad. He's had to deal with so much in just 5 months of life.

I pray that Shane and I can continue to keep our calm with all this happening to our little guy. I keep telling Shane that I'm so happy he is my husband, because I truly have no idea I would get through all this without the help, support, and love from him. Even though our genetics might be bad when they are combined (so sorry, Isaiah), it seems like God gave us each other to live through all this together.

And we will keep fighting for our little boy. We will measure out all his food at every meal. We will crush his thyroid pill everyday. We will give him heal pricks twice a week. We will give him breathing treatments everyday. We will give him antibiotics until his sore little bottom is better. We will take him to the doctor again and again. We won't complain that he still doesn't sleep through the night. We will hold him and love him every single day. We will thank God for giving us such a blessing when he gave us Isaiah. We've learned so much in our 5 months of parenting and although we don't understand why our little guy has to go through all this, we know that it is going to be ok.

And I truly believe that all that matters is...

I have Isaiah.

So what if he has PKU. So what if he has hypothyroidism. So what if he needs breathing treatments. So what if he might have MRSA. He is healthy. He is happy. He is normal. He is the light of Shane and my life. He is perfect. And he is here.

In our home. In my arms. He is here.

We love you so much, Zay!

5 comments:

Alana said...

Isaiah is a little trooper and you and Shane are GREAT parents! You are both doing a wonderful job! Babies are a true blessing!

Sheena said...

What a touching testimony from a mother with a heart of gold. You all are still in my prayers. Isaiah is such a lil toughie!

Afton Kay Webb said...

AWW i just read your posts. You guys are AMAZING parents! I am so happy that little isaiah has such a wonderful support system from his family! Jayden will have someone to go to family functions with...it will be wonderful! I cant wait...wait, yes I can. Brenna just turned 2 and I feel like it was yesterday. I remember every little detail about the both of them being born and I cant believe how time flys. Soon enough Isaiah will be outside with shane and sam trying to ride that darn unicycle! lol :) I really do praise you guys for being such good parents...such good christians..and just such good people in general. I know you guys arent technically my family, but I am sure proud to claim all of you as my family!mom says shes prolly never getting married again lol but well see how that goes..its been 6 years for her and bruce already. and sam's started to call me his sister! makes me happy:) anyways just wanted to say keep it up guys, you are doing wonderful...and I cant wait until I see you at thanksgiving!

Julie said...

Your little one is precious! And so very strong! He IS going to be ok! As a mother of 3, one with PKU, I have found that parenting is a constant learning experience!

Jennifer Rice said...

You made me cry! I feel those same emotions, but you just reminded me to be more thankful, especially for my wonderful husband. Thank you for that and for sharing your feelings...it really does help other people too. You are a shining example and an encourager. God bless you and Shane and Isaiah, and I pray He will continue to give you this strength. Sorry I missed all this while I was on my long vacation!

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